A woman with a strange skin disease she had to be bedridden for 10 months and wait years of suffering before receive your diagnosis. But the ordeal of him does not end there, because it ensures that until today he they bully.
Kira Archuleta, a 24 year old from California, (USA)she suffered from this pathology and many took the opportunity to make fun of her: they nicknamed her cruelly Freddy Kruegerfor the character of A Nightmare on Elm Streetthe burnt serial killer who kills his victims in their dreams, resulting in their deaths in the real world.
What is your rare skin disease?
What Kira has been diagnosed with is a severe form of the rare skin condition hidradenitis suppurativa (HS).
Boils and lesions would appear if scratched and then spread all over the body.
his family had history of acne and polycystic ovary syndrome (PCOS)), so at first she thought her hormones were to blame for her symptoms, she reports The mirror.
After trying the cannabidiol oil (CBD) without success, Kira discovered that the antibiotics and painkillers the prescriptions were their only hope for controlling the intolerable signs.
She was officially diagnosed at age 17, but her HS It took its toll socially and laboriously: almost a year in bed prevented him from continuing his job in a supermarket bakery.
What the young skin disease victim said
“A doctor came into the room and said, ‘You have hidradenitis suppurativa.’ I was shocked, I’d never heard of it before. Not only did I have wounds, spots or lesionsthey were real holes in my body“, explains the young victim, who assures that in some you could even “put a whole hand into it”.
Despite the mess he had no genetic background In her family, Kira has had a hard time understanding that beauty is in all bodies, beyond appearances.
“Now, with pain control with antibiotics, I can work and live a full life. I’ve learned that embracing your body is what makes you beautiful, not appearances,” she recites in the style of a self-help book.
beginning of the ordeal
Alarms went off in Kira as clots began to spread to areas like the face, thighs, breasts and groin.
“At first they shamed me. They told me the problem would go away if only I “cleaned better”, which made me feel even worselike he was doing something wrong,” he reveals with some anger.
“I was afraid to show my face for so long, because society told me I was ugly. people like me feel rejected and forced into hiding. It’s been long years of growing pain,” explains the American.
In this sense he gives examples, such as the one who had to leave the softball school. And that he’s gone from being “strong, outgoing, athletic and bubbly” to a shell of who he was before.
The disease has spread throughout his body. The blisters burst and the pain grew. Standing or walking much was impossible. So she had to quit her job and it was impossible for him to find another one.
“It was very difficult. My independence was taken away from me: my mother bathed me, changed my bandages every morning and cooked me food,” she recalls, adding: “I wouldn’t be alive if it weren’t for my mother Tina, 48.”
Hospitalization, care and diet
The young Archuleta no longer had the will to live, so after about 10 months of suffering she made the decision to enter the hospital.
She was transferred to UC Davis Medical Center in Sacramento, California and was held there hospitalized for seven nights.
“They gave me IV antibiotics and fentanyl and they cleaned my wounds properly,” she says.
Back home, he has started taking doxycycline for flare-ups and is starting Humira, a drug typically used to relieve arthritis pain.
She also adopted a new skincare routine, which included “hot showers once a day, witch hazel and moisturizer”Zoom in The mirror.
He also had to adjust his diet: he stopped eating red meat, pork and dairy products because he says they’re “not good for reducing inflammatory symptoms.”
“This is more than just a condition, or even a disability. Hidradenitis superivativa is a plague“She assured bluntly, not forgetting to mention that even in these times she is being attacked by comparing her to Freddy Krueger.
And he closed: “This strange condition has helped me to be grateful. Now through TikTok I try to spread the knowledge of hidradenitis suppurativa”.
Source: Clarin
Mary Ortiz is a seasoned journalist with a passion for world events. As a writer for News Rebeat, she brings a fresh perspective to the latest global happenings and provides in-depth coverage that offers a deeper understanding of the world around us.