He is 6 years old, has a rare skin disease and has cast himself as a role model

Since he came into the world he has faced challenges. And she always does it with a smile. Harper Foy she is six years old and, according to medical records, is one of 20 people in the United States with Harlequin ichthyosisa rare disease that causes skin to grow ten times faster than normal.

When the baby was born, the professionals only gave her one 50 percent chance of survival. She today she is a happy girl who loves to sing, dance and pose for the camera.

A story of overcoming

Harper was born with Harlequin Ichthyosis, an incredibly rare genetic condition that only occurs in 1 in 500,000 newborns.

This condition causes a thick skin, dry, in the form of fish scales, generalized and persistent. As it is renewed very frequently, it must shower four times a day to soothe itching and pain. It is that she is always reddened by constant detachment.

Thus, from the beginning of school in this 2021, the girl takes a bath an hour before entering the classroom. During the lunch break they come to pick her up for a second shower. The third is given to him when she comes home from school and the last one before bedtime.

However, Angie Foy (44), his mother, who is an employee of a real estate agent in Edmonds, Washington, assures that the disease did not slow her down. In reverse.

“There was a time when we were worried that she would never be able to go to school,” the woman told the newspaper. meter. “There are other people with her condition that we know are home schooled, so the fact that Harper was able to get started this year is a miracle for us.”

Thanks to his way of being cheerful and outgoing, the girl has not had the slightest problem making friends and integrating into the group of peers.

“Harper has such a great sense of humor and personality that you can’t help but love her when you meet her. She has such a unique personality, a special sense of fun,” said her mother.

Being a model, the dream becomes reality

The family signed a two-year contract with a modeling agency shortly before the coronavirus pandemic, but unfortunately, due to the situation, they were unable to work at the time.

Thankfully, in these days when the world is already returning to normal, Harper has already filmed it first modeling campaign. “We can’t reveal too much because he hasn’t been released yet, but we can’t wait to see his face on the billboards,” Angie said.

Due to her condition, Harper couldn’t do her hair or makeup like models usually do, but that didn’t stop her from giving everything in her work, medium highlights.

“Her skin and scalp are too sensitive to do her hair and makeup, but they had the music blaring and she danced around the room“, described the mother.

The commercial will be seen early next year and the girl is very excited – and eager – to see it.

“Harper will always be different from other people and her skin will always need special care and attention, But we will cross each bridge as we get there“concludes his mother.