A 5-year-old boy died of a strange medical condition.
The mother told the tragic story and last moment of her five-year-old son, who died in the arms of his parents. Derby’s Mickleover Sam Liu was initially “Ordinary virus” When he has a fever.
However, his condition deteriorated rapidly and he was taken to the hospital when he suddenly suffered a series of seizures. Sam’s parents, Rachel and Jim, When the doctors desperately tried to understand what was happening, they were watching with fear and helplessness.
They placed the unresponsive Sam in an induced coma and tried all possible antiepileptic drugs for the next 7 weeks.
The boy suffered from a strange medical condition and died.
They found that Sam suffered from a very rare illness. One of them is one in one million.Called febrile seizure-related epilepsy syndrome (FIRES), is usually caused by a mild infection such as a cold.
Tragically, aggressive and constant seizures caused catastrophic brain damage, Eliminates all the possibilities that Sam can lead a decent quality life.
Seven weeks later, Sam’s chances were exhausted and doctors decided to discontinue treatment and remove him from the ventilator. On the morning of May 8, 2021, Rachel said: “Time seems to have stopped”
Sam died in 2021 with a strange medical condition.
“We told him not to be afraid, but he went towards the light and said he would meet people who love him so much …” the father said of his son’s last moments. ..
“And so, our dear boy died in the arms of his mom and dad.” Rachel and her sister
The last word
Rachel recalled Sam suffering from “very hot, slight fatigue and lethargy” on the weekend of March 2021.
He said, “I asked her if she wanted to drink water. She said no, Mom, it seemed strange to me after she took the medicine.” “I didn’t know at that time, but it was the last word. You will hear my son say.
A devastated family cannot get comfort after the death of their five-year-old son.
“I sat Sam on the kitchen table and gave him a glass of water before going to bed and noticed that he was drooling and blowing bubbles.” Half laughing and half scared I told him I asked why he was blowing bubbles. Sam didn’t answer … He fell unknowingly in my arms. ”
Rachel called the emergency room and Sam was taken to the children’s emergency room. In the ambulance, he no longer talked, cried, or searched for his mother... “I knew Sam had a serious problem in the ambulance. Call it her mother’s intuition,” Rachel said.
Sam had two other seizures in the hospital, squeezing the airways. It was then decided that he should be transferred to the Pediatric Emergency Department at the Queen’s Medical Center in Nottingham. Doctors put him in an artificial coma, and although his parents were distraught, he was convinced he could stop the seizures.
They were convinced that there was a “giant protocol for antiepileptic drugs” that could be given to Sam. But keep in mind Rachel. At first the medicine worked, but then his brain found a way to avoid them and he would have another seizure. ”
“It was devastating and broke my heart. I was terrified, emotionally shattered, and beaten.” A team of neurologists said Sam had a previously healthy child. Revealed that he had a fire to make There are continuous seizures that last for more than 24 hours.
According to the Epilepsy Foundation, between 2 weeks and 24 hours before the onset of a seizure, children with FIRES have a relatively mild infection with fever. About one in ten children in FIRES have died, and the surviving children have long-term disabilities.
Source: Clarin
